Stronger for Samuel

Kevin Diaz / Stronger Than ALGS

We are fundraising in honor of Samuel Diaz Celis. A brave young warrior living with Alagille Syndrome. Our mission is to raise awareness, strengthen support, and inspire hope for all families impacted by ALGS.
  • $1,330

    Raised

  • $1,500

    Goal

  • 18

    Supporters

  • 8

    Days Remaining

Recent Transactions

About Stronger for Samuel

In December 2019, our son Samuel was diagnosed with Alagille Syndrome. He was only 8 months old. Since then, we’ve been navigating the complexities of this rare liver disease, along with a congenital heart defect (Tetralogy of Fallot) and autism. Now 5 years old, Samuel’s life is filled with appointments, therapies, procedures, and moments of both struggle and incredible strength. Samuel splits his days between school and intensive ABA therapy, and he continues to receive care from specialists in Dallas every three months. He also attends speech and occupational therapy weekly. Like so many ALGS families, we know the toll this diagnosis takes—not just medically, but emotionally and financially. The long drives, the waiting rooms, the tough conversations, the sleepless nights. But through it all, Samuel continues to fight with a strength that inspires us every single day. We’re proud to join the Stronger Than ALGS campaign because we believe in the power of community. Funds raised help the Alagille Syndrome Alliance (ALGSA) continue offering critical support—like direct financial aid, education, referrals, and scholarships—to families like ours. These programs meet people where they are—often in their most fragile moments—and remind us we’re not alone. This campaign is about more than fundraising. It’s about rising from fear and uncertainty with resilience, hope, and love. It’s about walking beside families who live this reality daily and giving them the support they deserve. Will you stand with us? We are stronger together. #StrongerThanALGS #StrongerForSamuel