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Small but Mighty

Erin Lucca / ALGSA FIGHT for a Better Life 2024

We may be small (in stature and number!) but we are mighty in our efforts to support the Alagille community!

  • $7,246

    Raised

  • $6,000

    Goal

  • 86

    Supporters

  • 27

    Days Remaining

Recent Transactions

About Small but Mighty

Last year we raised $12,000 for the Alagille Alliance after welcoming our own Alagille warrior, Kate, into the world. This year we are aiming are sights at a more modest goal of $6,000 (but wouldn't it be amazing if we exceeded our goal?!?) to support the ONLY patient advocacy organization in the world supporting the Alagille community.

Alagille Syndrome is a rare disease caused by a genetic mutation that primarily impacts the functioning of the liver. It is unknown how many people are living today with Alagille. It is estimated to be about 1 in every 30,000 live births or 1 person per every 100,000 (that's maybe 80,000 people globally!). The Alagille Alliance has their work cut out for them! Let's do our part to help them help this amazingly strong and rare community!